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The Ehlers Danlos Society
Ehlers-Danlos syndromes are a group of connective tissue disorders that
can be inherited and are varied both in how affect the body and in their
genetic causes. They are generally characterized by joint hypermobility
(joints that stretch further than normal), skin hyperextensibility
(skin that can be stretched further than normal), and tissue fragility.
(For information about the hypermobility spectrum disorders, please
visit “About HSD”.)
My son and I are affected by it. However we both suffer from the lesser type, the Hypermobile EDS.
One type is extremely serious, the vascular EDS, it triggers arterial rupture or dissection in individuals less than 40 years of age;
unexplained sigmoid colon rupture: or spontaneous pneumothorax in the
presence of other features consistent with vEDS. Vascular EDS is inherited in the autosomal dominant pattern.
No cure has been found to this date.
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